Thursday, February 5, 2015
To Scotland!
This is going to be a year of travels =] First off to Florida with Christie and Michelle over spring break, then to Edinburgh for the summer! I'm ridiculously excited, but also sort of nervous about living on my own in a completely different country with no one I know... Housing and transportation and everything is going to be so weird... Have to sort out visas and immunizations and everything too.
But I've been so blessed to be able to go. Amazingly blessed. There's just... such a heaviness in my heart that's been there since yesterday, and I don't know when or if it will ever go away.
But I've been so blessed to be able to go. Amazingly blessed. There's just... such a heaviness in my heart that's been there since yesterday, and I don't know when or if it will ever go away.
Dear World,
Today is my friend Tommy's 21st birthday. I've known Tommy since middle school and he's always been such a bright light in my life. He's an amazingly wonderful, selfless, and inspiring individual, and just such a joy to be friends with. I have so many wonderful memories of classes and clubs together, and how he could always make us laugh. However, due to his struggle with ME/CFS, he is unable to continue his career at Stanford and, in the chance he doesn't recover, will "never be able to complete my degree, hold a job, or get married and have kids." Please pray for his health and recovery, and if you are able, to donate to the cause and/or forward his fundraising letter to someone who might have the means.
===============================
(this letter may be made public for fundraising purposes)
I am writing with regards to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). With ME/CFS, healthy people get infected with a virus which infects the CNS. These people are left extremely ill, often bedridden, and most will remain ill for the rest of their lives. There is no treatment or cure for ME/CFS. This disease affects > 1 million Americans.
A year ago, I was a sophomore at Stanford studying computer science. Things were going great. I had a 4.0 GPA and summer job offers from Facebook and Dropbox. I was also in extremely good shape. I had run varsity track in high school and once set a school record by doing 29 pull ups. My medical history was a clean slate. As you can guess this story goes, I got infected with a virus which infected my nervous system. I became very ill with ME/CFS and am now too weak to walk more than 100 feet or work for more than several minutes in a day. I will most likely never recover, in which case I will never be able to complete my degree, hold a job, or get married and have kids. Only 15% of patients will recover.
There is hope. Researchers have made significant progress in the last year towards better understanding this disease. A dream team of researchers at Stanford has assembled to tackle this disease. These researchers have access to state of the art equipment and can measure the levels of thousands of genes expressed in the body, track thousands of proteins, and pick up even the tiniest amounts of viral DNA. Most promisingly, they have identified 2 experimental drugs, one which fights viruses and another which modifies the immune system which works in about 2/3rds of ME/CFS patients. Everything is in place for us to tackle this disease in the next several years except one thing: funding.
The funding situation for ME/CFS is embarrassingly poor. Most serious diseases receive hundreds or thousands of dollars in research funding per patient per year. HIV/AIDS is another disease which is caused by a virus, has a poor prognosis and affects the same number of patients as ME/CFS. AIDS research gets $3 billion in funding per year, or about $2000 per patient. With ME/CFS, the figure is $5 million per year for a mere <$5.00 per patient. For a disease which affects >1 million Americans and has an annual economic impact of $26 billion, this funding situation is inadequate.
Our goal is to raise $100 million dollars in private funding for ME/CFS research. This will allow us to understand the details of the disease, and run larger clinical trials to prove these experimental drugs are effective. We expect this level of funding will allow us to cure many cases of ME/CFS in the next several years, getting a million Americans back to work. With an economic impact of $26 billion, this is a better return on investment than received by the early investors in Facebook.
To make a donation, please visit:
http://med.stanford.edu/sgtc/donation.html
Sincerely,
Tom Camenzind
===============================
This just breaks my heart.
Tom Camenzind
===============================
This just breaks my heart.
Wednesday, February 4, 2015
Tuesday, February 3, 2015
Into the Void
Does depression hit like a wave breaking against a cliff base? Or is it more like a trickle, a leaky roof gone unnoticed until it floods the house? Is it possible to recognize the onset and stop it? And how would one do it? Just through sheer will and prayer?
Is it possible to be both depressed and happy at the same time? To be joyful and have every reason for that, but to just have a deep set sadness and dissatisfaction?
Just some thoughts.
It's absolutely incredible what people go through on a daily basis. And it's also amazing how we can be so apathetic to other's needs. Even the best of us can be so oblivious sometimes. It's also beautiful though, just... people.
I don't know what I'm saying anymore, I should go do work.
Is it possible to be both depressed and happy at the same time? To be joyful and have every reason for that, but to just have a deep set sadness and dissatisfaction?
Just some thoughts.
It's absolutely incredible what people go through on a daily basis. And it's also amazing how we can be so apathetic to other's needs. Even the best of us can be so oblivious sometimes. It's also beautiful though, just... people.
I don't know what I'm saying anymore, I should go do work.
Monday, February 2, 2015
Sunday, February 1, 2015
Boston!
Went to visit Eric (and Benji!) at MIT after winter retreat (which was absolutely amazing). Had an awesome time. Honestly, I'm so blessed with such great friends that take time from their busy schedules to have me over and entertain me and stay up way too late every night haha. Met a lot of Eric's friends too, which was super awesome - they're really great people. Lots of food, played some knockout and lots of Spades... =] Intersession was wonderful. Time for a new semester!
Friday, January 30, 2015
Saturday, January 24, 2015
Post-Finals
Sitting in my room, eating Qdoba, watching Tangled. This is absolutely wonderful. Super excited for retreat (though I still can't find my snow pants)!
Also, a major highlight: I think this semester is my highest in terms of grades ever!
Also, a major highlight: I think this semester is my highest in terms of grades ever!
Friday, January 23, 2015
Sunday, January 18, 2015
97/100
On my ORF final! It's been such a ridiculous ride in that class, and I've struggled so hard, I can't even express how amazingly stunned and happy I am with this... Granted this would be a great thing regardless of which class, but given that it was in a class I legitimately thought might be my lowest grade ever during my time here... =] Now I need to make sure my quantum and psych grades don't drop...
Wednesday, January 14, 2015
Monday, January 12, 2015
Wish list
You know, if anyone wanted to get me presents... Disclaimer: This is actually just reference for myself.
This pen.
This puzzle.
Earring cuffs (admittedly I rarely even wear earrings nowadays but these are cool!)
This magenta Venice women's wallet purse.
Mickey Mouse Disney tsum tsum. Or Roo and Chip for that matter. Super cute!
Amazon gift cards (for Kindle books!). Or just books in general, really.
This pen.
This puzzle.
Earring cuffs (admittedly I rarely even wear earrings nowadays but these are cool!)
This magenta Venice women's wallet purse.
Mickey Mouse Disney tsum tsum. Or Roo and Chip for that matter. Super cute!
Amazon gift cards (for Kindle books!). Or just books in general, really.
Monday, January 5, 2015
96/100
Well that's a first. Happy as I am, I'm annoyed at myself for the 4 points I missed, because I basically egregiously misread the question. Ah well. Time to study (or you know, print things and pretend I'm being productive that way).
Subscribe to:
Posts (Atom)




